Parents become FASt Friends
The FASD Family and Community Support Network – also called
FASt Friends – was born from the first FAS Family Summer Camp
held in Washington state in August 2003. The camp was modeled after
similar camps that have been held in the state of Alaska over the
last few years and was the result of a positive collaboration between
federal, state and local agencies. I had the great pleasure of being
one of the individuals from the University of Washington Fetal Alcohol
Syndrome Diagnostic Clinic who planned the camp, as well as attend
the camp with my family in my role of family advocate for the university.
One of our goals was to provide children with FAS an opportunity
to meet and interact with other such children, as well as to provide
their parents and siblings with training and support.
The parents who attended the camp were so excited about meeting
and sharing their stories, their fears and their dreams with each
other that they wanted to not only stay in touch, but to offer those
positive feelings to other parents or caregivers of children with
fetal alcohol disabilities. The families were also overjoyed at
the positive interaction between the parents and the professionals
at the camp. And so the FASD Family and Community Support Network
The parents have maintained almost daily email and phone contact.
They have listened and supported each other through difficult school
issues, questions about medications, and shared experiences and
accomplishments of their children and themselves. They meet once
a month for pizza, conversation, hugs, laughter and maybe even a
tear or two. One mom drives 7 hours one-way to attend these support
gatherings, and it’s not for the pizza. The group has begun
to invite other parents and caregivers to join with them to share
their experience and to offer mentorship. This group of caregivers
is made up of birth parents, foster parents, adoptive parents and
relative placements. But they all share their love for their children
with FAS. They are very special people and I am very lucky to be
part of this experience.
FASt Friends has the desire to provide and promote positive interaction,
cooperation and collaboration between families, professionals and
community members. They want this to be a mutual process for the
ultimate benefit of everyone involved, but especially for the individual
with alcohol-related disabilities.
The support network is already awaiting the next family camp. In
the meantime, they held a holiday celebration in December that included
not only parents, but also siblings and affected children, as well
as some of the camp staff; the guests of honor were the “Man
in Red” and Mrs. Claus. It was a huge success. There are plans
to have these “mini” family camp experiences every three
or four months, along with adult-only meetings that will provide
support and opportunities for continued sharing, as well as educational
and training opportunities. There is also an email listserve and
Web site in the creative beginning stages. Some of the mothers have
discussed a “moms’ weekend out” by renting rooms
at a local hotel to eat, swim, do nails, scrapbook and watch a tear-jerking
I believe that there will be no limit to the possibilities for
this unique and motivated group of individuals. They see the power
in cooperation, the success of collaboration and the potential for
success. They understand that “Families, Awareness, Support,
and Dreams” are their goals. I am honored to be part of this
For more information, please call 206-940-2832 or email FASDSupport@aol.com
FASt Friends Network members gain strength
The following letters are from members of the FASt Friends community.
|My husband and I have adopted five
children, ages 13, 13, 8, 5 and 4, and are in the process
of adopting our 21-month-old foster son. Four of our six children
were exposed to drugs and or alcohol in utero. Life with six
children is very busy and also a lot of fun. We have good
days and bad days. The hardest part of raising children with
alcohol effects is remembering how our kids’ brains
function, and working with the schools. The schools don’t
understand what our kids need or how hard it is to do school
work with them at home. I had never felt like such a failure
as a parent until my kids started school in their current
school district. I am treated like a second-class citizen
at the school. My saving grace for dealing with all this is
the new FASD support group that I joined. I am able to talk
with or email my new friends and get all my frustrations out
or ask for advice. We all live with kids with an alcohol disability
– so when I tell my story I am not belittled, I am understood,
and I get feedback. The support group truly makes me feel
I'm a single mom of a beautiful
7 year-old little girl named Maria*. I was her foster mom
at birth and later adopted her. Being a single mom to a child
with FAS is quite challenging. It's such a relief to have
the FAS support network – parents of children with similar
special needs. The group attended a Christmas-with-Santa party
at Alfy's Pizza for the local families affected by FAS.
I was so happy that we could go to a party
where, if Maria did something different from a normally developing
child, it was okay. It was okay that she played under the
table more than anywhere else. It was okay that she banged
her head on the table in frustration when she couldn't get
her shoe on. It was okay when she so innocently lifted up
her dress for all to see to scratch her tummy. It was okay
that she hugged people that she didn't even know, like they
were her best friends (and most hugged back with just as much
enthusiasm). I could relax, knowing that the other parents
understood. I didn't get any stares, because their kids were
doing the same kinds of stuff.
For the most part, Maria and I are doing wonderfully. I get
by with a good sense of humor and a lot of patience. And I
am so thankful for the FAS support network (thank God for
email!). People are always telling me how lucky she is to
have me. But I see it differently. I am so blessed to have
this beautiful, funny affectionate little girl. We make a
|I would like to share a little bit
about the support and education and new family that I have
found since we were invited to the first FASD summer camp
in August 2003. We met at a little summer camp, just about
10 families, and I was scared going in. At first, I kept hearing
all the women there talking about how their kids were adopted
or were their foster children, and here I was, a biological
mom to a child with FASD. I thought that they might look down
on me for drinking while I was pregnant with my daughter,
who is now 8 years old. I have never been so wrong in my life.
These women welcomed me with open arms, and now have become
a part of my family. We learned more about parenting kids
with FASD and how to handle their behavior issues while also
learning that we were not the only parents dealing with these
issues. Since leaving camp we have formed a parent support
group and meet once a month. We have also reached out to newly
diagnosed families, and want to be a support to them and provide
then resources like we have done for each other. So don't
think that the diagnosis of FASD means that you are all alone
in life –there are people out there that will support
you and help you in any way that they can. I thank the support
group for everything they have done for my kids and me. They
all inspire me in so many ways.
*names have been changed
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FASD management: A work in progress
It is now generally accepted that FASD is a chronic condition.
It is really a neurodevelopmental and neuropsychiatric disorder
that can appear in infancy, with or without facial dysmorphology,
and progress into adulthood. The patients with FASD present with
symptoms of common psychiatric disorders such as ADHD or depression,
and with behavior that is unusually impulsive and devoid of judgment
that might be expected given their age and general intelligence.
They have complex learning and language problems not explained by
These patients continue to challenge conventional treatment programs.
They do not respond predictably to medication. They are often labeled
as Oppositional Defiant or with a Conduct Disorder in childhood
as they appear to be deliberately misunderstanding questions. Generally,
there is a lack of understanding of the pervasive language and learning
problems that show themselves in subtle but important ways. Children,
adolescents and even adults with FASD do not appear to have words
for emotions (a condition called alexithymia) and so show their
feelings through physical symptoms or aggressive behavior. In addition,
children and adolescents with FASD often do not understand the context
of social situations and therefore commonly misrepresent themselves.
This lack of social cognition and social communication can lead
to many misunderstandings and sometimes place the client with FASD
in a compromising position. Clearly this complex set of disorders
requires new approaches in management.
Persons with FASD not infrequently present with apparent classic
psychiatric disorders (such as ADHD) along with their neurodevelopmental
disorder. At times conventional psychopharmacological approaches
may be helpful in controlling certain symptoms. The multi-modal
approach— combining medication and psychological approaches
to symptom management—has been pioneered in the treatment
of ADHD and its principles can inform and guide joint treatment
approaches in FASD, as well.
At the current time there are, unfortunately, no standard practice
guidelines for management of FASD, either medical or non-medical.
Many anecdotal stories abound with evidence of this or that treatment
being helpful to an individual child, but no researched integrated
management strategies have surfaced. This is surely a time to advocate
for holistic management principles that will lead to specific approaches
that can be researched. For instance, a marriage of habitually used
medication with various sensory integration, psychological and language
therapy approaches might be defined and then used as a protocol
for studying effectiveness in addressing specific behaviors and
The array of management strategies for other neurodevelopmental
disabilities such as autism have shown the way forward; perhaps
some of the collective energy and ideas from this field can inform,
and guide, approaches and funding for research for FASD. Family
advocates who have practical experience in coping with the problems
of youth with FASD at home may be the best at generating ideas for
management, be it techniques of providing structure, exercises that
enhance language skills, or finding sources of financial support.
Physicians and other professionals who work with youth with FASD
and their families are in a position to generate standards for the
safety of medications, providing early diagnosis and for performing
novel treatment methods such as techniques for sensory integration.
After 30 years of FASD recognition, management is still a “work
in progress,” but it needs to be recognized as the future
for clients, families, and mental health and language therapists.
The future of FASD is truly NOW. It lies in the measured, scientific
evaluation of a multi-modal management approach. The field of FASD
management research must catch up with already studied approaches
for conditions as ADHD and autism. It is time that the psychiatric
condition associated with Fetal Alcohol Spectrum Disorder be defined
with set criteria, that these be recognized by the committees charged
with revising the Diagnostic and Statistical Manual for Mental Disorders,
and that, with this foundation, research on services begin in earnest.
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Meet the FASIS board of directors
From its start in 1991, Iceberg has been a collaboration of professionals
and family members who, like its readers, are keenly affected by
and involved in FASD issues. The FASIS board includes adoptive and
birth parents of children with FAS, professionals who treat patients
with FASD and researchers who continue to develop our understanding
of the affects of prenatal alcohol use. Their ideas and input shape
every issue of Iceberg and of the larger dialogue about FASD and
related disorders. We present our current board members below.
Sandra Clarren has worked with individuals with FASD, their families
and the support workers that assist them for more than 15 years.
Since the early 1990s she has had a range of roles including workshop
presenter, researcher, writer and diagnostician.
Sandra received her BA in psychology and her MA in education. Initially
she was a special education resource teacher and diagnostician in
the United States and England. After receiving her doctorate she
has worked as a school psychologist in private practice and in public
and private schools in the Puget Sound area, at Children’s
Hospital in Seattle, and at the University of Washington as a founding
member of the Fetal Alcohol Syndrome Diagnostic and Prevention Network.
Most recently she has been a consultant and lead writer on Alberta
Learning’s teacher guide: “Building Strengths, Creating
Hope: Strategies for Supporting Students with Fetal Alcohol Spectrum
Paul Connor is an Acting Assistant Professor at the Fetal Alcohol
& Drug Unit of the University of Washington’s Medical
School in Seattle. He received his undergraduate degree in Psychology
at the University of Washington then received his Ph.D. in Clinical
Psychology and Neuropsychology from Brigham Young University. Paul
completed his internship in Neuropsychology and Clinical Psychology
while at the Henry Ford Health System in Detroit. He has specialized
training in neuropsychological assessment, neuroimaging research
and mental health treatment.
Paul has been a member of the Fetal Alcohol & Drug Unit at
the University of Washington since 1995 where he began as a Post-Doctoral
Fellow. He is the Project Director on a longitudinal prospective
study of the long-term effects of prenatal alcohol exposure. He
serves as a Co-Investigator on a study using structural MRI and
neuropsychological tests to assess adolescents and adults with FASD.
He is also a Co-Investigator on a study that is applying the findings
from the adult and adolescent MRI study to a sample of highly exposed
infants. In this study infants highly exposed to alcohol and control
infants are given a cranial ultrasound within the first few months
of life and the shape of their corpus callosum is measured. Most
recently, he became the Principal Investigator on a study using
functional MRI to measure brain activity in adults with FASD.
His research interests include the use of neuroimaging technologies,
neuropsychological testing, and mental health assessment with prenatally
alcohol-exposed populations. He has given trainings on the cognitive,
social and emotional impacts of FASD to medical, psychological,
and forensic professionals and affected families around the country.
Paul is a new member of the FASIS board, joining in 2003.
Heidi Connor is a technical writer for a Seattle-based software
company and the Webmaster for two nonprofit organizations, including
FASIS. She has worked in various facets of the computer field for
the last 12 years, as a writer, web designer, tester, and support
James B. Fox has been the president of Fox Electric Inc. since
1973. In 1963 he graduated with a BS from the University of Puget
Sound and was a professional with Boy Scouts of America for the
next two years. He served on the Board of Directors of the Spastic
Children’s Clinic from 1967-1969. He is currently on the Board
of Directors National Electrical Contractors Association, Puget
Sound Chapter, where he has been serving for 22 years. He joined
the FASIS board in 1996. In 1970 he adopted an 8-month-old daughter.
In 1990, he heard a radio interview with Michael Dorris describing
his son as diagnosed with FASD, and thought Dorris might be describing
his own daughter. After a troubling young adulthood, she is now
34 and successfully co-parenting her 9 year old son.
Katy Jo Fox
Katy Jo Fox is the Webmaster and office assistant for the Fetal
Alcohol and Drug Unit at the University of Washington in Seattle.
She became interested in FAS issues in 1990, after she and her parents
read "The Broken Cord" by Michael Dorris, and saw the
similarities between the author's adopted son – who was diagnosed
with FAS – and Katy Jo's own adopted older sister. Her sister
had moved out on her own prior to their introduction to FAS, but
this new knowledge brought a certain kind of resolution with the
past, and hope via understanding for the future.
As a child, Katy Jo watched her parents try everything from counseling
to Outward Bound (a wilderness survival program), in order to change
the troubling behaviors her sister exhibited. Keeping her sister's
diet wheat- and sugar-free helped control mood swings, but it didn't
impact her problems in school and trouble relating to others. It
wasn't until she was much older that Katy Jo learned all sisters
were not like hers – having a best friend who was in Katy
Jo's class instead of her own (7 grades up), not knowing when it
was time to stop the "you hit me, I hit you" game, not
even understanding how much bigger she was than her little sister.
These experiences have helped Katy Jo show empathy and support when
talking to/emailing others struggling to understand their own family
members, students or friends. Katy Jo enjoys being able to give
them hope, as her sister, now 34 years old, is a happily married,
wonderful co-parent now succeeding in her second year of college.
After reading "The Broken Cord", Katy Jo tried to tie
FAS into every school report or project possible. She knew that
she eventually wanted to pursue her interest in FAS, but was not
sure what direction to take. After traveling to Germany and Italy
in high school, she fell in love with Europe. In 1999, Katy Jo graduated
from Seattle Pacific University, where she combined her two interests
by earning a BA in European Studies with a minor in Psychology.
She has plans to one-day assist with the prevention of FAS in Europe.
Katy Jo began volunteering at the Fetal Alcohol and Drug Unit in
1997, and was hired on as their Webmaster five months later. She
joined the FASIS board in March 2000. She is a member of "FASlink",
a ListServe about FAS, and "FAS Europe," an online group
at Yahoo.com. She also works part time at a thrift store run by
Bellevue Christian School, her alma matter. Whenever the opportunity
arises, she talks to customers about FAS.
Julie Gelo is the legal mother to 13 children ranging in age from
4 to 37 years old. She and her husband Lynn live in Bothell, Washington,
with the youngest seven children, and have been licensed foster
parents for the last 12 years. Eight of Julie’s children have
been diagnosed with fetal alcohol syndrome or related conditions,
including the seven who live at home and her oldest birth daughter.
She has been in addictions recovery for over 24 years.
Julie has been the Family Advocate for the Washington State Fetal
Alcohol Syndrome Diagnostic and Prevention Network core team at
the University of Washington for 8 years. She is also a member of
the Master Training Team for the Foster Parent Training Institute
with the Department of Social and Health Services/Division of Licensed
Resources. She presents workshops and trainings on fetal alcohol
syndrome and effective advocacy throughout the United States and
Canada. She serves as a steering committee member for the FASD Center
for Excellence and is an advisor on many other projects, including
a future curriculum and video for birth moms and the addiction field.
This past summer Julie, along with Iceberg board member and diagnostic
team member Tracy Jirikowic, planned and held the first annual FASD
Family Summer Camp for the state of Washington. From that camp experience
“FASt Friends,” an FASD Family and Community Support
Network, was formed.
Julie was involved in the production of an educational series
on Fetal Alcohol Syndrome entitled “Journey Through The Healing
Circle” which was produced and directed by DSHS. This 2-hour
series of videos was aired on PBS channels throughout the Pacific
Northwest and Canada and made it to the finals for a Regional Emmy
She enjoys reading, music, photography and dancing and is very
active with her family in Special Olympics. Her goal for the future
is to write a book on FASD sharing families’ stories of courage,
hope and humor.
Charles Huffine has practiced child and adolescent psychiatry
in Seattle since 1975. In his private practice he has specialized
in the needs of adolescents and their families, and is actively
involved with all issues that relate to teenagers. Though not a
researcher, he has been close to the Fetal Alcohol Research Unit
at the University of Washington. His special interest in FASD relates
to the many adolescents who are presumed to have ADHD, bipolar,
or conduct disorder issues, yet also have judgment, impulsivity
and educational problems similar to youth with FAS. He has been
a leader in acknowledging the high incidence of undiagnosed FASD
among troubled youth.
Charley also holds a part-time position with the King County Mental
Health, Chemical Abuse and Dependency Services Division as the Assistant
Medical Director for Child and Adolescent Services. In this position
he participates in policy and program direction for King County's
mental health authority; from this work he has taken an interest
in system-of-care reform and is a principle in a federal grant program
that seeks to promote a wrap-around process to better help families
take charge in caring for their troubled youth. He is committed
to wrap-around principles as they emphasize family empowerment,
individualized and tailored care of children, cultural competence
and community-based and coordinated care. His special interest is
in helping adolescents and young adults who have been in the system
articulate their perspective on the care they have received and
add their voice in public policy discussions. Through the grant
program, he helped found Health ‘N’ Action, now a nationally
recognized program promoting youth voice.
Charley was raised in Seattle, attended the University of Washington
and the UW School of Medicine. He trained in general psychiatry
at the University of Michigan in Ann Arbor before being drafted
into the U.S. Army during the Vietnam War. He served as a drug abuse
program leader at Ft. Campbell, Kentucky, for most of his two years
of military service. He returned to the University of Washington
to complete his training in child and adolescent psychiatry. Charley
was involved in social activism as a medical student and psychiatry
resident, including working with street kids through the Open Door
Clinic in the late 60's in Seattle’s University District.
After completing his training, he committed a portion of his professional
life to working in public agencies. He served 20 years as a consultant
and staff psychiatrist at the Seattle Mental Health Institute, a
community mental health center. For five years of that time he participated
in a school-based day treatment and mental health services program
in the Seattle Public Schools. He also served at Luther Child Center
in Everett, the Children's Home Society of Washington, and Friends
of Youth, serving in residential and foster care programs. He is
still involved at Youth Advocates, a foster care and group home
program for youth. He is on the board of Peace For the Streets by
Kids From the Streets, an organization that serves street youth
on Capitol Hill in Seattle.
Charley identifies himself as a community psychiatrist. As such
he believes strongly that community and family issues are vital
factors that shape the way that problems manifest in an individual.
Children, particularly those hampered by fetal alcohol damage, are
vulnerable to adverse social conditions. He integrates his ideas
about the importance of social context into all his work with teenagers.
This interest has propelled him into national leadership in child
and adolescent community psychiatry. He served four years as president
of the American Association of Community Psychiatry and remains
active on that organization’s board where he promotes policy
supportive of youth and their families. Charley includes in his
advocacy for youth a more active recognition of the needs of youth
with FASD, particularly as they transition to adulthood. He has
been proud to serve on the FASIS editorial board where he remains
in close touch with leaders in the FASD community, both family members
and researchers. He believes strongly in parent-professional partnerships
in policy development as well as in treating individual youth; the
Iceberg offers him a forum for such collaboration.
Tracy Jirikowic has been a pediatric occupational therapist since
1991 and has worked with children in public schools, early intervention
centers and other clinical settings. She has been a team member
of the University of Washington’s FAS Diagnostic and Prevention
Network for the past eight years and is currently involved in diagnostic,
research and training activities in the field of alcohol-related
disabilities. Tracy also co-organized an FAS family camp in Washington
state in August of 2003. She has her Ph.D. in special education/rehabilitation
medicine from the University of Washington. Her research interests
include understanding sensory processing and integration issues,
and early learning and development in children with FAS and alcohol-related
Kieran Darragh O'Malley, MD is from Belfast, Ireland. He qualified
in medicine from University College Dublin, and is a Board Certified
Psychiatrist and Board Eligible Child Psychiatrist. He has been
affiliated with the Fetal Alcohol and Drug Unit in Seattle since
1997, involved in teaching and research. Currently, he is Acting
Assistant Professor in the Department of Psychiatry & Behavioral
Sciences, as well as Adjunct Faculty in the Henry M. Jackson School
of International Studies. In addition, he has a small consultation
practice in Calgary dealing with FASD and Autistic Spectrum Disorder
patients. This will be the seventh year that he directs a staged
reading of James Joyce's Ulysses at the UW. He has three children/young
adults, Darragh, Nora and Brendan Joyce.
Dr. Ann Streissguth is a Professor in the Department of Psychiatry
and Behavioral Sciences at the University of Washington School of
Medicine in Seattle. She received her master’s degree in child
development from the University of California at Berkeley, and her
doctoral degree in clinical psychology from the University of Washington.
Ann is a licensed clinical psychologist with a specialty in behavioral
teratology. She has worked with patients with Fetal Alcohol Syndrome
(FAS) and Fetal Alcohol Effects (FAE) and their families and their
communities for 30 years, and is one of two founding FASIS members
still serving on the board of Iceberg.
Ann currently directs the Fetal Alcohol and Drug Unit of the University
of Washington Medical School in Seattle, which has investigated
many types of prenatal influences on later development in offspring
including alcohol, tobacco, cocaine, aspirin, acetaminophen, and
rubella virus. Prior to this work Ann studied the impact of poverty,
preschool and caretaking experiences on child development. In all,
she has published over 160 scientific papers, three books, and a
slide-teaching curriculum on Alcohol and Pregnancy. Her most recent
books are: Fetal Alcohol Syndrome: A Guide for Families and Communities,
Paul H. Brookes Publishing Co. and The Challenge of Fetal Alcohol
Syndrome: Overcoming Secondary Disabilities, University of Washington
Ann and her colleagues have been actively involved in research
on preventing FAS and FAE. In 1978, she collaborated with Dr. Ruth
Little in a 3-year federally funded project to develop methods to
intervene in female alcohol abuse during pregnancy and prevent FAS.
In 1989, Ann and colleagues developed and evaluated the impact of
a model advocacy program ("Birth to 3") for helping high-risk
women for three years after an alcohol- or drug-exposed pregnancy.
This program is now called the Parent-Child Assistance Program (P-CAP)
and under the direction of Dr. Therese Grant, has been funded at
four Washington sites by the state legislature since 1997 and replicated
at 12 sites in other states and Canada. For the past 18 years, Ann
and colleagues have worked with Native American Communities and
the Indian Health Service to provide FAS workshops and direct consultations
to American Indians and Alaska Natives.
Since 1974, Ann has been the principal investigator of the Seattle
Study on Alcohol and Pregnancy (a longitudinal prospective study
of the long-term effects of social drinking during pregnancy) funded
by the National Institute on Alcohol Abuse and Alcoholism (NIAAA).
This ongoing study finds long-term neurobehavioral consequences
of prenatal alcohol exposure and recently won an NIH Merit Award.
In 1992 she began a major research project funded by the Centers
for Disease Control on secondary disabilities in patients with FAS
and FAE and associated risk and protective factors, which culminated
in an international conference in Seattle in 1996. Most recently
Ann, Dr. Fred Bookstein and colleagues developed morphometric/neuropsychological
methods of detecting adolescents and adults with FAS/FAE from MRI
and neuropsychological test performance.
In 1985, Ann was co-recipient with Dr. Paul Lemoine of France of
the International Jellinek Memorial Award for Advancement in the
Field of Alcohol Studies. In 1987, with Dr. Ruth Little, she received
an award for outstanding contributions from the American Medical
Society on Alcoholism and Other Drug Dependencies. In 1992, the
National Council on Alcoholism and Drug Dependence presented the
Silver Key Award to Ann for her "outstanding contribution and
research on FAS and FAE". In 1997 she was awarded the University
of Washington Outstanding Public Service Award; and the KINDER award
for outstanding contributions to the well being of children at risk
from the University of Texas. In 1998 she received the Rosett Award
for her outstanding contributions to FAS research. In 2000 the New
York State Office of Alcoholism and Substance Abuse honored her
with one of their eight "Women of the Century" Awards.
In 2002 the American Psychological Foundation awarded her a Gold
Medal for Lifetime Achievement for Psychology in the Public Interest.
In 2003 the National Organization on FAS presented her their Excellence
Award for her dedication and pioneering contributions to the fight
against FAS. Most recently, the Neurobehavioral Society, the Teratology
Society and the Toxicology Society selected her for the 2003 "Decade
of Behavior" Distinguished Lectureship, given in June 2003.
Marceil Ten Eyck
Marceil Ten Eyck is a psychotherapist and counselor in private
practice in Kirkland, Washington. She specializes in working with
individuals, couples and families impacted by chemical dependency
and other addictive behaviors.
Prior to opening her private practice, Marcy worked in a community
mental health agency as a staff member of the anger management and
domestic violence team, then as a family counselor and coordinator
of the family program at an inpatient treatment center for chemically
dependent women. She holds a Masters of Counseling degree from Seattle,
University; is a Licensed Mental Health Counselor in Washington
state, a Washington State Certified Chemical Dependency Counselor,
and a Nationally Certified Master of Addictions Counselor.
Marcy has lectured extensively about Fetal Alcohol Syndrome and
Fetal Alcohol Effects to various groups throughout the United States
and Canada. She acts as an FAS consultant to alcohol and drug treatment
agencies, schools, social service agencies and to other counselors.
As a staff member of the Fetal Alcohol Syndrome Diagnostic Clinic
at the University of Washington, Marcy assisted in providing resources
and counseling support for family members during the often painful
process of securing a diagnosis of FAE or FAE. She was a member
of the King County Task Force on Prevention of FAS/FAE, and was
a member of the steering committee for a research grant at the Pregnancy
and Health Clinic, University of Washington, researching secondary
disabilities sustained by individuals with FAS or FAE. Ms. Ten Eyck
is currently a member of the steering committee for the National
FAS Center for Excellence in Washington DC.
As a founding member of FASIS, she has written numerous articles
for Iceberg. She and her two daughters have written chapters for
the book Fantastic Antoine Grows Up, about older adolescents and
young adults living successful lives with FAS/FAE.
As the mother of two daughters, one with FAS and the other with
FAE, Marcy has a special and personal interest in finding ways to
successfully parent, educate and prepare these challenged individuals
to live to their fullest potential. In 1991, she co-founded the
first parent support group in Washington state and continues to
work with families to help them deal with overwhelming emotions
and to cope with the day-to-day impact of this syndrome in their
In November 2001, Marcy was chosen to receive the Nichols Leadership
Award, an endowed award presented annually to a person or group
in the community who has demonstrated consistent advocacy on behalf
of the needs of chemically dependent women and their families.
Marcy has been in recovery from chemical dependency for over 23
Janice Wilson Vaché
Janice Wilson Vaché served as the Iceberg’s editor
and designer from 1996 until 2001. With Iceberg’s change from
paper to an online newsletter, she returned as editor in late 2003.
A freelance writer and editor by trade, she became interested in
FAS issues while working at the March of Dimes Western Washington
Chapter several years ago. She is currently volunteering with Feed
Washington, a new organization committed to feeding hungry kids
in Washington state.